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Helping patients find trustworthy information and support services

Many people living with persistent or poorly understood symptoms struggle to find reliable information and appropriate support. Our signposting work aims to help patients, families, and healthcare professionals find trusted resources, organisations, and services that may assist them on their health journey.

Resources for Patients

Our “Making the Most” guides that offer advice on preparing for GP visits, attending hospital or specialist appointments, and understanding and managing medically unexplained symptoms. ​​

Useful Links

We have a carefully checked directory of useful links to trusted organisations and services, covering areas such as health and care services, patient advocacy and support groups, genetic and rare disease resources, mental health support, patient rights, and practical logistics like transport and communication support.

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