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Welcome

"We realise that the tasks of advancing the care of forgotten patients, the treatment of overlooked diseases, and an interest in lost ideas are ambitious and extremely daunting. But, we sense a willingness among many to try."

We are a registered charity under Forgotten Patients, Overlooked Diseases (#1202442).

Recent events and publications

ONLINE WEBINAR

Forgotten Patients, Overlooked Diseases and Lost Health Solutions

held on Dec 14, 2022

2:00 PM in London

ABOUT

Treatment and support are available for most common diseases. For those suffering from a rare condition, there will usually be a society or self-help organisation. Members of the research and medical communications community are generally familiar with helping these groups.

By comparison, there is a sizeable number of people who may have complex, medically unexplained symptoms but no clear diagnosis. It is estimated that up to 50% of GP consultations do not result in a clear diagnosis. Often, affected individuals feel overlooked as they get shunted from one specialty to another, endure countless tests and are tried on a range of unsuccessful treatments. People do not know where to turn while money and resources are wasted. Being labelled as having a functional or psychosomatic illness may compound their problems resulting in chronic mental health problems.
 
During this webinar, we highlight the ‘Forgotten Patients’ group, examine with examples why the patient journey can go wrong and explore whether some previously proposed health solutions might be of value.

WATCH INDIVIDUAL SESSIONS

PUBLICATIONS

"The challenge of medically unexplained symptoms, overlooked diseases and forgotten patients"

BJGP Life, August 12, 2022

ABOUT

Primary care can do so much but not everyone benefits. Some patients with medically unexplained symptoms (MUS) suffer years of referrals and inconclusive tests. Others find themselves overlooked by health care services and feel forgotten. Their voices are unheard, they are unable to find a way forward through the system. Diagnosis may be delayed when the disease is unfamiliar to the doctor, or when the physician incorrectly presumes a functional or psychogenic cause while failing to recognise an underlying pathological process. People in this ‘no man’s land’ may receive inappropriate and even harmful treatment. They risk mental health problems after being repeatedly told pain is “caused by past trauma or by stress”, or that it is “all in their head”.

Image: Forgotten gloves by the kerb, by Andrew Papanikitas, 2022

AUTHORS

Bill Noble, Adrian Tookman, Carmen Schmechel, Richard Stephens, Christine Oesterling,Karim Jani, Revd Peter Speck, Eva Diehl-Wiesenecker, Katia Chrysostomou, Steven Walker

READ THE FULL ARTICLE

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