Helping People find their way

Living with complicated symptoms that don’t fit a diagnosis is challenging. Those affected may feel dismissed, overlooked and forgotten in the healthcare system. If this is familiar, you are not alone. At Forgotten Patients, Overlooked Diseases, we help people find a way forward.

What we offer

Support

Research

Education & Awareness

signposting

Fundraising

Run the Royal Parks Half Marathon for Forgotten Patients, Overlooked Diseases

In October, we will be running the Royal Parks Half Marathon in London to raise funds for Forgotten Patients, Overlooked Diseases. The event supports our work to improve awareness, research, and support for people living with overlooked conditions.

Take part. Raise awareness. Help overlooked patients be heard.

https://www.royalparkshalf.com/charity-runners

Resources for patients

These guides will help you navigate your health journey. Learn how to handle GP visits, hospital appointments, and living with MUS (medically unexplained symptoms). Each one is full of information, suggestions, and helpful tips!

GP visits

Hospital appointments

Medically Unexplained Symptoms

Patient Stories

Behind every condition is a person with their own journey. Many people living with complex or poorly understood symptoms face long paths to recognition, understanding, and care. By sharing these stories, we hope to highlight lived experience, raise awareness, and help inform better support, research, and clinical understanding.

Upcoming event

We are pleased to announce that the 3rd Annual Conference of Forgotten Patients, Overlooked Diseases will take place on 24 June at the Royal College of Physicians, London.

The conference will bring together clinicians, researchers, patients, and advocates to discuss the challenges surrounding overlooked diseases and persistent symptoms, and to explore opportunities for improving understanding and care.

Further details, including the full programme and registration information, will be announced soon.

Jess's Rule

An important step forward in patient safety

Jess’s Rule is a welcome step forward in patient safety, encouraging GPs to “think again” when symptoms persist or a diagnosis remains unclear after three consultations. Named after Jessica Brady, it reinforces the importance of revisiting assumptions and listening carefully to patients with ongoing concerns.

Seeking a second opinion in the face of uncertainty should be seen as good practice, not a weakness. While this is a positive cultural shift, further work is needed to ensure people with complex or unexplained symptoms are properly supported and signposted

Movement for good

The Benefact Group’s Movement for Good initiative offers a simple but powerful opportunity to support charities by giving away company profits to good causes. Through public nominations and funding rounds, it helps channel meaningful financial support to organisations making a real difference in their communities.

Please nominate us now!

Learn More