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RECOGNITION • UNDERSTANDING • BETTER CARE

Helping people
find their way

Living with unexplained symptoms can be confusing, frustrating and isolating.

We bring together patient experience, practical information and research to improve care for people who are overlooked.

Registered charity no. 1202442

Support, Information and Action

Explore the ways FPOD can help.

Support and signposting

We provide support and help people find the right information, services and next steps

Research and change

Turning questions and lived experience into better understanding.

Education and awareness

We produce publications and organise events to help people understand their health and care

Practical guides

GP visits

Tips to help you prepare, communicate and get the most out of your appointment

Hospital appointments

Practical advice for navigating hospital visits and keeping track of information

Unexplained symptoms

Information, strategies, and support for living with uncertainty

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Every experience matters

Real experiences from people living with unexplained and overlooked conditions. Discover stories of challenge, resilience and hope.

From the FPOD community

Fundraising, events and opportunities to get involved.

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ROYAL PARKS HALF MARATHON

13.1 miles for overlooked patients

Congratulations to Lylah, Jo and Amar for completing London’s Royal Parks Half Marathon on 11 October 2026 and raising vital funds for FPOD.

Donate on JustGiving →

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ENDURING SYMPTOMS 2026

Watch conference recordings and explore speaker slides

Catch up on expert talks, patient perspectives and practical insights from our hybrid CPD conference at the Royal College of Physicians, 24 June 2026.

Explore recordings →

Latest from FPOD

News, stories and ways to get involved.

Make diagnostic doubt visible in healthcare

ARTICLE

Navigating diagnostic doubt

Why diagnostic uncertainty matters.

Read the article →

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VIDEO

Rare diseases: real lives

Emergency care, with Dr Eva Diehl-Wiesenecker.

Watch the video →

NEWS

Jess’s Rule

An important step forward in patient safety.

Find out more →

GET INVOLVED

Movement for Good

Providing funding for charities.

Find out more →

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