Forgotten Patients, Overlooked Diseases
Bringing together patients, families, clinicians and researchers.
Listening to patients. Working for change.
Connecting lived experience, clinical insight and research to improve recognition and care.
Support & signposting
Helping people find relevant information and organisations.
Education & awareness
Sharing knowledge through guides, publications and events.
Research & change
Bringing patient experience into research and better care.
Practical help for your next step
Clear, accessible guides to help you navigate healthcare.
Your GP visit
Prepare your questions and make the most of your appointment.
Hospital appointments
Feel better prepared, understand your care and keep track of next steps.
Unexplained symptoms
Information and support for living with uncertainty.
PATIENT VOICES
Every experience matters.
Explore a growing collection of experiences from people living with persistent symptoms, overlooked conditions and difficult journeys to diagnosis.
From the FPOD community
Latest from FPOD
Recognising Rare Diseases in the Emergency Department
A discussion with Dr Eva Diehl-Wiesenecker.