Forgotten Patients: Overlooked Diseases
Resources for Patients
"Making the Most" Guides
These guides will help you navigate your health journey. Learn how to handle GP visits, hospital appointments, and living with MUS (medically unexplained symptoms). Each one is full of information, suggestions, and helpful tips!
GP Visits
Nervous or worried about going to the doctor?
This guide will help you feel confident and well-prepared. Understand what to do before the appointment, what to bring, what might happen once you get there, useful questions to ask, and the next steps!
Referred to hospital or a specialist for an appointment?Not sure what to expect? Feeling stressed?
This guide will help you approach the visit with your symptoms, questions and goals in mind.
Learn how to prepare, what might happen at the appointment, likely outcomes, and helpful next steps!
Hospital Appointments
Useful Links
Not sure where to get information? We have checked each of these links to make sure they are useful and accurate!
They are divided into health & care services, patient advocacy, support & charities, genetic, rare & undiagnosed diseases, mental health support, patient rights, and logistical information.
Health & Care Services
Patient Advocacy, Support & Charities
Genetic, Rare & Undiagnosed Diseases
Mental Health Support
If you know of any other useful resources, or you would like to give feedback on our patient guides, please get in touch!