Forgotten Patients: Overlooked diseases

Welcome

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09:30-09:45 - Exploring the importance and complexity of MUS, typical symptoms, and patient journeys

Dr Jay Verma (President of the General Practice and Primary Care Section, Royal Society of Medicine [RSM]; GP Partner, Shakespeare Health Centre, Hayes, West London)

Jeshni Amblum-Almer (Past President, GP Section, RSM; Course Director, Belmatt Healthcare Training, London)

Dr Adrian Tookman (Chair, Forgotten Patients, Overlooked Diseases charity [FPOD])

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1. THE PROBLEM WITH MUS (Chaired by Jeshni Amblum-Almer)

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09:45-10:00: The patient's experiences.

Christianne Forrest and Katia Chrysostomou (Patient representatives, FPOD)

 

10:00-10:15: The doctors experiences of MUS

Dr Jay Verma (RSM)

 

10:15-10:30: MUS in A&E - is the picture different from primary care?

Dr Jon Matthews (A&E Consultant, St Mary’s Hospital, Paddington, London)

 

10:30-10:50: KEYNOTE PRESENTATION: Where does the consultation go wrong?

Prof Graham Easton (Professor of Clinical Communication, Academic GP and Broadcaster, Queen Mary University, London)

 

10:50-11:10: Discussion

 

11:10-11:25: Coffee break

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2. EXPLORING SOLUTIONS (Chaired by Dr Jay Verma)

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11:25-11:40: Ethical considerations in MUS and equity of access; what needs to change? 

Chantal Patel (Head of interprofessional studies, Swansea University)

Dr Kiran Jani (Trustees, UK Clinical Ethics Network)

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11:40-11:55: Importance of clinicians exploring doubt with MUS

Dr Adrian Tookman (FPOD)

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11:55-12:10: ‘But, Is it all in the mind’ – views of a specialist psychiatrist

Dr Muj Husain (Consultant Liaison Psychiatrist and Co-Clinical Director, Persistent Physical Symptom Unit, South London and Maudsley Hospital, London)

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12:10 -12:25: Is genetic testing the answer? Should everyone with MUS undergo genetic testing?

Prof. Julian Barwell (Clinical Geneticist, Academic Champion and Honorary Professor in Cancer studies, Department of Genetics and Genome Biology at the university of Leicester)

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12:25-12:40: AI and MUS – Dr GPT will see you now

Dr Keith Grimes (GP and AI in healthcare expert; founder and consultant, Curistica Ltd)

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12:40-13:00: Panel Discussion.

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13:00-13:45 BUFFET LUNCH AND GARDEN BREAK

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3. LEARNING FROM OTHERS (chaired by Dr Adrian Tookman)

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13:45- 14:05: Good medicine has much to offer – Practical tips for individuals, families, and HCPs

Dr Jay Verma (RSM) and others

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14:05-14:45: Current support and research in the UK and EU.

Prof. Chris Burton (Professor of Primary Medical Care, School of Medicine & Population health, University of Sheffield)

Dr Steven Walker (Trustee and Secretary FPOD; Director, St Gilesmedical London & Berlin)

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14:45-15:00: TEA BREAK, visit to the stands and networking

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15:00-16:15: Supportive therapies, innovative approaches and thinking out of the box

Dr Minha Rajput-Ray (Integrated medicine physician, Curaidh Clinic, Dundee, Scotland)

Dr Francis Kynaston-Pearson (Consultant rheumatologist, Nottingham and Derby)

Dr Sanjay Gupta (Consultant Cardiologist, York Teaching Hospitals)

Lou Evans (Rapid response physiotherapist, Derbyshire Community NHS Foundation Trust)

Nigel Penny (Director, Centre for Applied Nutrition and Nutritional Therapy, Birmingham; Associate Professor, Coventry University)

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16:15-16:30: Panel discussion, summary, and future directions

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16:30-17:00: Summary and close

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17:00-18:30 - DRINKS RECEPTION

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Dr Jay Verma is a GP partner at Shakespeare Health Centre in West London, and president of the General Practice and Primary Care section at the Royal Society of Medicine (GP section RSM) . After qualifying from the university of Aberdeen, jay achieved a MSc in Stem Cells and a Postgraduate Degree in Musculoskeletal Ultrasound

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Jeshni Amblum-Almer was the immediate past president GP section RSM. Jeshni originally trained as nurse in South Africa. After moving to the UK in 1999 where she was among the first independent nurse prescribers. Jeshni has lectured in interprofessional learning at St George Medical School and at Kingston, City and Heartfordshire universities. Jeshni is CEO/ founder of Belmatt Healthcare Training

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Dr Adrian Tookman is a recently retired physician whose previous roles include being Clinical Director for the charity Marie Curie, Medical Director at the Royal Free Hospital NHS Trust (RFH), and Consultant Palliative Physician at The Marie Curie Hospice in London and the RFH. Currently, he is chair of the Forgotten Patients, Overlooked diseases charity

 

Christianne Forrest is a patient advocate from Swansea, South Wales. She is a cancer survivor with a chronic health condition

 

Katia Chrysostomou is a performance coach providing support to the medical communication community. She is based in London

 

Dr Jon Mathews is an A & E consultant at St Marys Hospital, Paddington. He trained in London and was made a fellow in Urgent and Emergency Care Systems Transformation for Hertfordshire and West Essex. He spent in the USA and was awarded an MBA with distinction from Greater Manchester Institute of Management.

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Professor Graham Easton is an Honorary Professor of Clinical Communication Skills at Queen Mary University of London. Graham is an academic GP and broadcaster with extensive experience in undergraduate and postgraduate medical education. He has expertise in clinical communication skills (internationally & UK), with a track record in Faculty development, education research and medical journalism.

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Chantel Patel & Dr Kiran Jani are both members of the Institute of Medical Ethics. Chantel is Head of Interprofessional Skills at Swansea University. Kiran is a retired consultant anaesthetist and a member of the Board of Trustees, UK clinical Ethics Network. 

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Dr Muj Husain is a consultant Psychiatrist with the Persistent Physical symptoms Service. He is also Consultant in Liaison Psychiatry at King's College Hospital where his work includes supporting medical teams on the wards and helping people in crisis in the A & E. Muj studied medicine at the University of Cambridge and trained in Psychiatry on the Maudsley Training Programme in South London. He is a graduate of the NHS Medical Director Clinical Fellow Scheme where he spent a year working with the GMC.

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Dr Will Evans is a GP and a GPwSI in clinical Genetics with the Yorkshire regional genetic service and with the primary care stratified Medicine group. He is also NIHR GP career Progression fellow, Faculty of Medicine and Health Sciences, University of Nottingham. Will graduated from university of Leeds in 2002, gaining MRCS in 2007 and qualifying as a GP with MRCGP in 2010. He completed a PG certificate in Education in Primary Care with merit from the University of Leeds in 2013, and an MSc in Genomic Medicine with distinction from the University of Manchester in 2018. Will is trustee of the NPUK rare diseases charity.

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Dr Keith Grimes is a digital Health Specialist, Clinical Product Manager, experienced GP, global speaker, NHS & governmental advisor, and recognised thought leader. Using AI and Digital Health technology to meet the growing gap between demand and supply of healthcare globally, he has successfully led clinicians and product teams to deliver world-class, data-driven products at Babylon such as Symptom Checker, Monitor, and Health IQ

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Dr Steven Walker is a trustee and secretary of the Forgotten Patients, Overlooked diseases charity. He is director of St Gilesmedical, a medical communications company in London and Berlin. He is academically active with interest in research and teaching.  

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Dr Minha Rajput-Ray, is an experienced integrative medicine physician at the Curaihd in Dundee, Scotland, where she specialises in pain and chronic health management. She is a patient herself with complicated health issues.

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Dr Francis John Benedict Kynaston-Pearson is a consultant rheumatologist in Nottingham. Francis specialises in the diagnosis and chronic pain management of rheumatological conditions. In addition, he is an expert in the treatment of rheumatological associated joint disorders, such as hypermobility. Francis qualified from the university of Leicester. His post graduate training commenced in Oxford before a period in Brisbane, Australia. On his return, Francis trained at the QE and Birmingham City Hospitals. He undertook his specialist training in Nottingham, Derby, and Lincoln, qualifying in both rheumatology and General Internal Medicine.

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Dr Sanjay Gupta is a consultant cardiologist at York Teaching Hospitals. He has a special interest in cardiac imaging. Sanjay leads a multidisciplinary team supporting patients with medically unexplained symptoms.

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Lou Evans is a Rapid Response Physiotherapist at the Derbyshire Community Health Service NHS Foundation Trust with a special interest in chronic pain management and Fibromyalgia.

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Nigel Penny is an associate professor and head of Health and Life Science at Coventry University. He is director of the British Association for Nutrition and Lifestyle Medicine in Birmingham. 

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