ABOUT FPOD
Research and change
Building evidence. Improving recognition and care.
Research shaped by real experiences
We bring together evidence, clinical insight and lived experience to improve recognition, understanding and care for overlooked patients.
Current research
We are working with academic partners on research that explores key challenges faced by people with overlooked conditions and persistent symptoms.
Gaslighting in healthcare
Partner: University College London (UCL)
How dismissal and disbelief affect trust, diagnosis and care.
Exploring patient stories
Partner: University of Birmingham
Patient narratives revealing complex journeys and gaps in care.
Invalidation during medical consultations
Partner: Rutgers University
How communication shapes patients’ experiences of healthcare.
Research shaped by patient experience
Patient perspectives inform every stage.
Identify priorities
Highlight unanswered questions.
Shape research questions
Focus on what matters to patients.
Interpret findings
Understand their real-world significance.
Communicate learning
Make findings clearer and accessible.
Working together for change
We collaborate with partners to build evidence, raise awareness and improve care.
Universities & researchers
Research projects and evidence generation.
Clinicians & specialist centres
Sharing expertise and insight to improve care.
Patient organisations
Working together to amplify lived experience.
Interdisciplinary partners
Bringing together expertise for broader impact.
Sharing what we learn
Educational resources
Clear guides and materials for patients and professionals.