ABOUT FPOD
What we do
Turning understanding into action for overlooked patients.
Bringing people, evidence and ideas together.
We connect lived experience, clinical insight and research to improve recognition, understanding and care.
Six connected areas of work
Research & evidence
Identifying knowledge gaps and supporting research shaped by patient experience.
Review • Investigate • Share
Patient voices
Bringing lived experience into stories, surveys and priorities for change.
Listen • Involve • Co-produce
Collaboration
Connecting clinicians, researchers and patient organisations across boundaries.
Connect • Exchange • Work together
Education & awareness
Sharing accessible learning through resources, publications and events.
Explain • Learn • Discuss
Advocacy & recognition
Using evidence and lived experience to help overlooked patients be heard.
Represent • Engage • Raise awareness
Better systems
Encouraging clearer pathways, earlier recognition and more connected care.
Recognise • Coordinate • Improve
Different perspectives.
A shared purpose.
Better understanding grows when people learn from one another.
Patients & families
Clinicians
Researchers
Patient organisations