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Patient story library

Experiences of living with overlooked and unexplained conditions.

Begum Syndrome

The poem "Begum Syndrome" reflects on the ethical question of whether it is appropriate to rely on family members as interpreters in a clinical setting.

The Misread Playbook

A university badminton player spent four years struggling with severe fatigue and pain while being told she was simply overtraining. A diagnosis of lupus finally gave her answers.

The Silent Regime

A former medical student experienced severe headaches, chest pressure, and vision problems but was repeatedly told it was stress. A later diagnosis revealed dangerously high blood pressure.

Even doctors are overlooked

A doctor spent years being told her severe menstrual pain and exhaustion were "normal". An emergency later revealed a ruptured endometriotic cyst.

The Dissolving Masterpiece

A fine art restorer spent years seeking answers for severe neck and shoulder pain that was dismissed as long working hours. Further investigation revealed an underlying connective tissue disorder.

Structural Failure

After developing severe back pain and numbness, an architect was initially told she had a simple slipped disc. An emergency MRI later revealed a major spinal nerve compression requiring urgent surgery.

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